As Turner Syndrome Awareness Month comes to an end I wanted to share a really interesting and exciting event coming this summer to one of my favorite cities Boston Massachusetts. It is a week-long program that brings young girls with Turner Syndrome to bond together with fun and enriching experiences that they will take with them long after the week is over. It also will give them the tools to advocate and be open about their diagnosis. some of the girls even said it was a life-changing event for them and it could be for you. It is a jam-packed week of tours, education, and of course sisterhood. some of the past experiences include a Broadway show, a day in historic Salem, Fenway Park and so much more.
I have often stated that I never met anyone wh
o was diagnosed with Turner Syndrome growing up and often felt like I was alone. Yes, I had a lot of support from my family and friends but I always wished I had someone to talk to who was experiencing the same issues I faced. In fact, it wasn't until recently that I met someone right in my community who has TS and we have visited a number of times already and it always makes me feel like I am not alone.
That is why I wanted to share with you this exciting summit as it is so important that we feel understood and not alone in this disorder. Girls with Turner Syndrome are often shy and it is often harder to make friends. Ok so those that know me would say that I am defiantly not shy and even say I talk too much lol. I am that way because my parents enrolled me in the arts and it help me to come out of my shell.
This summit will certainly help you to feel at ease and will help you to come out of your shell as well and most importantly you will learn so much about yourself along the way. You will learn a sense of independence in the city that launched America's independence how cool is that. So if you are between the ages of 12 to 19 don't wait too long sign up now I promise you will love it. who knows you may even meet me this summer there too.
If interested visit their website www. bitssummit.org to learn more about it and how you can even volunteer to be a mentor.